Getting their child back from a ‘deep hole’

After Makena suffered 100 seizures, surgery became a ‘high point’ for these parents

It started off as just one seizure in December 2014, when Makena was only 15 months old. At that time, doctors assured her parents, Mike and Annalisa Whittle, that febrile seizures like the one their daughter experienced were not uncommon.

Then, one year later, Makena had another seizure. She was prescribed medication.

Then, another one came 10 months later. The seizures started coming with more regularity — a month apart, a week apart, then every day — until one day, she had suffered from 100 seizures while at the pediatric intensive care unit at BC Children’s.

By then, it felt like everything had fallen apart.

“How did it get to this?” asked Annalisa. “One day, we were watching Makena at dance class. And then — boom. In a bed. Can’t breath or talk.”

Makena was one of a small group of kids whose seizures can’t be controlled by medication. Specialists at the hospital determined that surgery was needed to stop the seizures.

“On any other day, that would have been the worst news we could have received,” said Mike. “But the hole was so deep at that point that the idea of surgery became a high point for us.”

It took two surgeries and the decision to remove Makena’s motor strip from the right frontal lobe of her brain to finally stop the seizures — but it came at a cost. Before going into the second surgery, Annalisa and Mike knew that Makena would come out of it with her left side paralyzed.

It was a decision they were willing to make in order to give their daughter the best chance possible.

And it did just that for her. Much to everyone’s surprise, about a month after starting rehabilitation at BC Children’s Sunny Hill Health Centre for Children, Makena started to walk again. She also re-gained the ability to use her left hand and the left side of her body.

Annalisa and Mike credit BC Children’s for saving their daughter.

“You’re handing your child to people you just met, but whom you trust because they’re the best at what they do,” said Mike. “And you just have to hold onto that as tight as you can.”

Makena and her family spent the seven worst weeks of their life at BC Children’s during December 2016 and January 2017 — which included the holiday season.

And she’s not the only one. Each year, kids from across B.C. spend their holidays at BC Children’s. They hold onto hope that one day, they can spend their holidays at home, with their families, perhaps enjoying a snowball fight outside or one of their other favourite activities.

The second annual Snowball Fight for Kids Campaign at BC Children’s Hospital Foundation is back — and its goal is to help these kids get back to being kids.

From Nov. 19 through Jan. 6, online donations can be made at snowballfightforkids.ca to help fund vital equipment, life-saving research, and the highest level of care for kids like Makena across the province.

Get local stories you won't find anywhere else right to your inbox.
Sign up here

 

Comments are closed

Just Posted

Port Hardy called in record number of black bear sightings last year

Conservation Officers attended 74 of the 314 calls made

Port McNeill’s outdoor swimming pool will stay closed this summer

The Town of Port McNeill typically hires 12-13 staff for the pool every year.

Bird contacting wires causes massive Port Hardy power outage

The power outage started at 1:18 p.m. and lasted until 3:00 p.m.

Port Hardy Salvation Army serving lunch daily during pandemic

Centre is closed to the public, but overnight shelter, daily lunch and one-on-one services available

March dental conference key to many of B.C.’s COVID-19 cases

Early infections from China, Iran were quickly contained

Tla-o-qui-aht First Nation woman, 26, fatally shot by police in Edmundston, N.B.

Police were conducting a well-being check at the time of the incident

Seniors to receive up to $500 in promised COVID-19 emergency aid in early July

The Liberal government first promised the extra help in mid-May, but had to create a new system to deliver the aid

VIDEO: Revelstoke bear wanders into Animal House pet store

Staff got ready to chase it out with a broom

Man found dead in his tent at Island homeless camp

Facebook posts tell of personal struggles and attempts to stay clean and sober

New study is first full list of species that only exist in Canada

Almost 40 per cent of them are critically imperilled or imperilled and eight are already extinct

Federal aid for care home systems needed ahead of second wave, advocates say

Ontario Long Term Care Association calling for more action

Horgan calls for national anti-racism program; will pitch idea to PM, premiers

Premier John Horgan said he’s horrified by the death of George Floyd in the United States

Most Read